The Danny Did Foundation was founded in January 2010 by Mike and Mariann Stanton following the sudden unexpected loss of their beautiful son Danny.
Danny suffered his first seizure when he was just 2.5 years old. His first seizure lasted five minutes and after being rushed the to the ER where a barrage of tests were done to establish why he had suffered a seizure, no underlying cause was found and Danny was discharged.
After Danny suffered a second seizure regular EEG’s took place but the family where not told that Danny had epilepsy or was at risk of SUDEP. Despite Danny only suffering from nocturnal seizures, the family were led to belive that Danny was not at risk and was safe to sleep in his own room and tragically he passed away overnight in December 2009 with his parents discovering him in the morning.
After losing Danny, the family decided that they needed to do whatever they could to help prevent further deaths in epilepsy. They have acheived this by advancing public awareness of Sudden Unexpected Death in Epilepsy (SUDEP), enhancing the SUDEP communication model between medical professionals and families afflicted by seizures, and the mainstreaming of seizure detection and prediction devices that may assist in preventing seizure-related deaths.
The Danny Did Foundation takes it’s name from the last line of Danny Stanton’s obituary, written by his dad Mike:
Danny Did’s programs focus on protecting kids with epilepsy. They raise much needed epilepsy awareness with a focus on Sudden Unexpected Death in Epilepsy (SUDEP) education.
Their grant program helps families to secure seizure detection alarms so that a loved one is not alone during a seizure. They also provide travel grants for families in need to attend epilepsy conferences and educational expos such as the Disneyland expo which takes place every November in California.
Watch to hear Danny’s mom and dad talk about why they made the choice to create the foundation 10 years ago.”Post acreddited to The Danny Did Foundation’s Facebook Page
As they head into their 10th year, a staggering 1600 grants have been awarded across all 50 states and 13 countries.
The charity celebrate Danny’s spirit in every child and family they reach.
One of the many children they have helped safeguard over the years is little Brinley, her Mum Angela explains how the charity helped them:
“Brinley is 3 years old and has epilepsy, The Danny Did Foundation is fantastic and helped us get the our PulseGuard Mark I monitor. We LOVE and depend on our Pulsguard greatly, before we got our first one neither my husband or I could get any sleep for fear of missing a seizure and our baby being in danger! We have recently raised funds to upgrade to the new Mark II system to continue protecting Brinley”Angela Simmons
After launching PulseGuard we found that we were inundated with requests from families in the US who desperately needed a PulseGuard monitor, but who were unable to afford one for themselves. We reached out to The Danny Did Foundation who graciously took PulseGuard on board and started funding monitors for families living in the US.
It has been a privilidge working alongside The Danny Did Foundation over the past few years and helping safeguard families in the US.
I have learnt so much about the family and their work through Mary Duffy who works for the charity but who is also a neighbour and close personal friend to the Stantons. I look forward to continuing to work closely with the charity into the New Year and watching them continue to grow as they embark on their 10th year.
If you have been helped by Danny Did and would like to give back to help assist anoher family in the New Year. Or you have been touched by the incredible work this family has done in helping safeguard thousands of US families and raise awareness for SUDEP.
Then please click on the link to go to the Charity donation page and help support their ongoing work https://www.dannydid.org/get-involved/donate/
Or follow them on facebook https://www.facebook.com/DannyDid/?__xts__%5B0%5D=68.ARA_A4c0anEzldQJWK9F697Z6qglOXVX4PZM0EtplnMT8Sdt9QKxH2lLFqWd036EKXtFmlrBYlPFVCyuUgGYM7nRucFOZKHjQmymHomPa4bKxMRFALLwwMSykADu845Gb42srpVKtbLyo6NwLhIMobABJQcuEt0fiSREzxeZVui16N5Zdp8O-76Do1LYoBoaJOlbtiPlmMzMPgvk5PDlCV5QDFFU6pBMoI0n6YZ9XdokoRxl7kSAukh1ZXnY1tGmhyFGhjpRNQ8gkUqwQGx6LacfzyMz7fxTYOq1v2Q90BcqOJm5q2TlYu7QIyC7R9_rUArh-Lb5VLhpNR_fBm9_