Tree of hope is unlike any of the other charities that we have featured in our 12 days of Chrismas campaign. Unlike other charities that we work with, who directly provide grants or funding to families. Tree of Hope is a crowdfunding charity that helps children and young people with a disability or illness by supporting their families to raise the funds they need to pay for specialist equipment and care that is not freely available through the UK healthcare system through Just Giving.
But with crowdfunding becoming a hugely popular way to raise money for all sorts of campaigns, why choose to raise funds through a charity? Well it allows the families to approach companies that can only donate to registered charities and ask for donations for their cause. The families who use the charity can apply for gift aid and even with the small fee the charity take (which are less than direct jg fees), the family get more money per pound than doing their own crowdfunding page.
They can also set up payments on the families behalf to therapies and services, saving the family vital time and hassle and can help negotiate VAT discounts from companies.
One of the families benefitting from crowdfunding through The Tree of Hope is Emma Goodson, who is raising vital funds for her son William who suffers from Angelman Syndrome.
Just Giving crowdfunding allows us to raise VITAL funds for Williams needs through the charity, Tree of Hope . The aim is to improve his motor function, give him the ability to use his digital Voice and improve his quality of life.
He has amongst nhs therapies, numerous private therapies that just don’t exist or aren’t accessible on the nhs.
William currently goes to:
- Reach for hippotherapy (physio on a horse not just horse riding)
- jumpstart centre for occupational sensory integration therapy,
- Kids physio works for private physio
- Brainwave for private speech and occupational therapy
All the above cost around £700 per month.
We’d love to send him to napa for intensive therapy at a cost of £10-12000 per 3 week stay.
He also needs significant home adaptions.
The family are currently fundraising for a UR Zone travel safe bed so that when William has to go into hospital or we go away, they have something safe for him to sleep in.
William has severe complex life threatening epilepsy (7 known seizure types) that puts him in hospital every couple of weeks and even intensive care on life support. William has had over 40 ambulances in the last couple years and takes nebulisers and twice daily medications to stay alive. He also has laryngomalacia bronchiomalacia, tracheomalacia, sleep apnoea, sévère reflux disease, pseudomonas auregenosa and low muscle tone everywhere leaving him with breathing and oxygen issues and general issues doing things we take for granted.
Because of this the family purchased a PulseGuard Mark II system earlier in the year with some of the funds raised with the help of Tree of Hope, to help safeguard William.
William has been through a particulary challenging time recently with several seizures that have caused him to stop breathing and require rescusitation.
“The PulseGuard has helped in terms of us being aware of William’s seizures much quicker. William can usually warn us when he feels a seizure coming on, but sometimes his seizures make him go unconscious. Now we have the PulseGuard, it signals to us when a seizure is coming on and has without a shadow of a doubt saved Williams life”Emma Goodson
He is a brave boy with all he’s been through and always bounces back with a giggle and a smile. Even after a seizure If he can!
so the family started a hash tag due to his bravery!
In November 2019 William’s bravery was recognised and he won a highly commended child of courage award at the Pride of Essex 2019 award Ceremony
To donate to William’s Tree of Hope Cause please click on the link
If you would like to setup your own crowdfunding cause through Tree of Hope please head over to their website https://www.treeofhope.org.uk/ Give them a call on 01892 535525
or give them a follow on social media https://www.facebook.com/treeofhope.childrenscharity/